We are a national patient advocacy organization that supports public funding of stem cell research. This research has the potential to remedy or cure Alzheimer's, juvenile diabetes, Parkinson's, MS, ALS, spinal cord injury, and many other illnesses and injuries.

SCAN is sponsored by the Genetic Policy Institute.

Many of our postings over the past year have been written by stem cell research advocate Don Reed. His blog is www.stemcellbattles.com.

We'd like to hear from you. Feel free to And remember, stem cells are for everyone!
State Stem Cell Agency Launches On-line High School Curriculum
Category: General — By: Raymond Barglow on March 1, 2010

State Stem Cell Agency Launches On-line High School Curriculum- A Key Tool for Training Today’s Youth for Tomorrow’s High-Growth Jobs

The California Institute for Regenerative Medicine, the state stem cell agency, has launched an on-line stem cell education portal. The extensive set of course materials and activity resources will help high school and other educators prepare the youth of California to join the fast-growing biotech economy and help that sector find the workers its leaders say are already in short supply.

“The launch of this new education portal brings us a step closer to ensuring California has a workforce with the educational and technical training needed to fill positions in the stem cell and biotech industries of the state,” said Senator Gloria Romero, Chair of the Senate Education Committee.  “We know that a solid education today is our best chance for economic recovery in California tomorrow.  By providing teachers and students with the resources they need to be prepared for the jobs and industries this state has and will have, we can secure a prosperous economic future built on California’s ingenuity and innovation.”
(Read on …)

Michigan Stem Cell Alert
Category: General — By: Raymond Barglow on January 19, 2010

We’re posting this message on behalf of the Coalition for the Advancement of Medical Research (CAMR):

Tomorrow in the State of Michigan, the Senate Health Policy Committee will consider a package of 6 bills that, if passed, will severely restrict stem cell research within the state.  If you have grassroots in the state of Michigan, we ask that you share the information below with them and ask them to oppose Senate Bills 647-652 by calling or e-mailing Senate Health Policy Committee members as well as their own Senators.

Last November, after significant debate, citizens of Michigan voted to pass Proposal 2,  legislation which modernized Michigan stem cell laws and brought hope to the millions of children and adults living with these devastating illnesses and injuries across our state and beyond..   Passage of Senate Bills 647 – 652 would redefine the regulations voted on in Proposal 2, and would place significant restrictions on this critically important research.
(Read on …)

CHRISTMAS EVE IN THE STEM CELL WORLD: December 24, 2009
Category: General — By: Don Reed on December 24, 2009

An act of personal kindness can mean so much, can’t it? One touched me the other day. My printer was jammed—a sheet of paper wedged inextricably– I could only get little pieces out. Life without a printer? I knew mine was getting increasingly ancient, and would have to be replaced, sooner rather than later– but times were tight financially. What to do, what to do? I had just bought a new re-filled second-hand cartridge and the people who sold it to me seemed nice… so I called them up and told them—and they were nice enough to say bring it over. They spent 45 minutes taking the printer apart—and freed the rollers. That’s why I am giving a free Christmas plug to CARTRIDGE WORLD, owned by Dominique Woon, at the Gateway Shopping Center, Fremont CA 94536 Ph. 510-790-2023, Email fremontcw@yahoo.com Christmas moments.,, I was talking to New York scientist friend, Mark Noble the other day, and the conversation was just getting to the point when I would ask him for another favor. (Read on …)

FOUR HORRORS: Stroke, Diabetes, Blindness, ALS– and How Embryonic Stem Cell Research May Defeat Them
Category: General — By: Don Reed on November 4, 2009

Before I met the monster on the road, I had been on my way South to Los Angeles for the Independent Citizens Oversight Committee (ICOC). This was an especially important meeting at which the big disease team grants would be decided, as much as $20 million each, loans or grants. Some projects would go forward, others would die. My cell phone rang. Pulling off the freeway and fumbling through my suitcase (keep ringing, keep ringing!), I found the phone, opened it, recognized the numbers on the screen. Dr. Hans Keirstead…. I dreaded what the voice might say. He had a project in question: a way to use embryonic stem cells to fight Spinal Muscular Atrophy: important not only to the children who suffer and die from this terrible condition, but to the entire field of research. (Read on …)

2009 World Stem Cell Summit Exceeds All Expectations
Category: General — By: Don Reed on October 7, 2009

“Breathes there a man with soul so dead, that never to himself hath said, “this is my own, my native land…?”—Sir Walter Scott. High on the side of the Hilton Hotel is a glass-walled bridge connecting to the Baltimore Convention Center: crossing it was like walking on plush carpets through the sky. The 2009 World Stem Cell Summit was housed in three ballrooms, each big enough to host its own convention. High ceilings? You could buzz a plane around in there! Surrounding the ballrooms was a collection of stem cell displays: biomed companies, exhibits from colleges, states, nations—and a changing set of science posters, each one deserving of a conversation with the scientist standing beside it. (Read on …)

AMERICA’S STEM CELL PROGRAM THREATENED BY LAWSUIT
Category: General — By: Don Reed on September 14, 2009

A lawsuit is being brought against the National Institutes of Health (NIH) Director Dr. Francis Collins, and Health and Human Services (HHS) Secretary Kathleen Sebelius, as well as the NIH and HHS as public agencies. The suit attempts to block the new stem cell research Guidelines, and to end federal funding of embryonic stem cell research. Here is my layman’s understanding of the case. First, the Plaintiffs, and why they feel they have “suffered irreparable damage” by the new Guidelines, and claim standing in the case: Dr. James L. Sherley and Dr. Theresa Deisher are adult stem cell researchers, who allege they will be injured financially if limited federal dollars are diverted to embryonic stem cell research, resulting in less funding for their area of specialization. Nightlight Christian Adoptions describes itself as a non-profit which “protects human embryos conceived through In Vitro Fertility procedure”. They claim injury through decreased number of embryos available for “adoption” from the new stem cell guidelines; they claim guardianship of Plaintiff Embryos, (some portion of roughly 440,000 in storage at present, plus more in future), describing said blastocysts as “minor persons”. (Read on …)

Obama’s Executive Order regarding stem cell research
Category: General — By: Raymond Barglow on March 19, 2009

We are, of course, thrilled and enheartened by the support being given to science and medical research by the new administration in Washington. The following letter went out to signers of a "Faith" initiative who are hoping for stem-cell based therapies and cures:

************************

Dear people of faith who favor stem cell research,

Way back in 2001, you signed our "People of Faith Petition" (at www.pfaith.org) asking President Bush to lift the federal restrictions on embryonic stem cell research,

 Well, we can say now that we’ve come a long way! 

Yesterday  President Obama signed an Executive Order lifting the restrictions on the research.   We can all  feel proud of what we helped to accomplish.  Patients and their families and friends live with renewed hope today that healing and relief of suffering may be on the horizon.

Obama spoke profoundly at the White House yesterday: "In recent years, when it comes to stem cell research, rather than furthering discovery, our government has forced what I believe is a false choice between sound science and moral values.  In this case, I believe the two are not inconsistent. As a person of faith, I believe we are called to care for each other and work to ease human suffering. I believe we have been given the capacity and will to pursue this research — and the humanity and conscience to do so responsibly."

Obama’s new policy is relevant to more than stem cell research — it signals a clear change of tone from the Bush administration on a broad range of scientific issues. This change in federal perspective is a great advance for the sick and disabled, for freedom of scientific inquiry, and for enlightened faith.

We note, however, that not all obstacles to ethical, life-saving medical research have been overcome.  Congress and/or the National Institutes of Health may try to obstruct implementation of the President’s Executive Order.  Also, there are quite a number of states that hinder or forbid embryonic stem cell research that is conscientious and holds enormous medical promise.  (Of course, adult stem cells can also be used in stem cell research, but almost all scientists in this field agree that working with embryonic cells remains essential to advancing the science and the search for cures.)

Still, all in all, this week has begun in a wonderful way!  Thanks once again for your support.

 

Faye Armitage for Congress in Florida
Category: General — By: Raymond Barglow on November 2, 2008

Faye Armitage is running for the US Congress in Florida, District 7.  She’s conducting a valiant campaign, although she’s been vastly outspent by her opponent.

Faye has for many years been an outspoken advocate for stem cell research.  See her eloquent plea for advancement of the research at:
http://hk.youtube.com/watch?v=95eV178Z2Jw

Thanks — and go Faye!  We appreciate the spirit as well as the intelligence you bring to our cause.

BE EVERYWHERE: Vicki Englund, Stem Cells, and Thirty Days to Remake the World
Category: General — By: Raymond Barglow on October 5, 2008

Dear stem cell research advocates everywhere,

Hope you realize that once again in this election, stem cell research is at issue in many races.  Although SCAN does not endorse any candidates, we would like voters to know where the candidates stand on this vital issue.  

Senator Obama has spoken out repeatedly and clearly in support of the research.  Senator MaCain has been less supportive.   See our comparison of these two candidates.

But there are many other races for state and federal office in which one candidate strongly supports the research.  A case in point is the campaign of Vicki Englund in Missouri.  See below the opinion of Don Reed who founded Californians for Cures and is also Vice President of Public Policy for Americans for Cures Foundation.  Don writes: 

The most important race? Presidential. Obama must win, or everything you and I care about is at risk. This is a lot more involved here than just the sheer joy of having a friend instead of an obstacle in the White House.

The most important state? Michigan : Proposition 2 must pass, or we tell the Religious Right it is okay to keep research in the Dark Ages.

The most important Congressional/Senate (state or national) race? Your call. Right now, I know of more than 100 races where there is a strong stem cell candidate America needs to support.

Like Vicki Englund   www.vickienglund.com
(Read on …)

California: THE DEFEAT OF SENATE BILL 1565
Category: General — By: Raymond Barglow on September 30, 2008

Don Reed (www.stemcellbattles.com) talks below about the tremendous victory for stem cell research in California.  Lots of credit goes to Don and to the patient advocacy group: Americans for Cures Foundation.

September 30, 2008

In the middle of the Wall Street chaos yesterday, as I sat watching CNN, wondering if I was witnessing the collapse of Western civilization, the telephone rang.

It was Amy Daly, co-executive director of Americans for Cures.

“I have news,” she said, “on SB 1565.”

Well, okay, I was sitting down anyway. More bad news would just fit with the rest of the day.

Senate Bill 1565: we patient advocates had been fighting that bill for the past eight months—through six committee hearings in the California Assembly and Senate– losing every step of the way. (Read on …)

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